TweetChat transcript for Friday, August 12. Topic: Do you Dr Google. The good, the bad, the ugly.

TweetChat transcript for Friday, August 12. Topic: Do you Dr Google. The good, the bad, the ugly.
*Tweets are in reverse chronological order. Please start from the bottom.
Perma Link: #tck TweetChat Transcript 8/12/11

@TheCoffeeKlatch Enjoy your week. Until next time, Mindi signing off. You can always reach me here @magnificentmndi Love, love, love... #tck

Fri Aug 12 13:59:24 +0000 2011 - tweet id 102016337412497409 - #2
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@TheCoffeeKlatch As always, questioning, listening and responding. *To know the road ahead, ask those coming back. ~Chinese Proverb #tck

Fri Aug 12 13:56:36 +0000 2011 - tweet id 102015629460119552 - #3
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@TheCoffeeKlatch As always, questioning, listening and responding. *To know the road ahead, ask those coming back. ~Chinese Proverb #tck

Fri Aug 12 13:56:36 +0000 2011 - tweet id 102015629460119552 - #4
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@TheCoffeeKlatch Friday 8/19 TweetChat. September is National #childhoodcancerAwareness Month. What is happening around the nation for #ccam. #tck

Fri Aug 12 13:54:30 +0000 2011 - tweet id 102015102798151680 - #5
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@TheCoffeeKlatch We will be sharing events/activities for #ccam. Be sure to join us to share your communities happenings. #childhoodcancer #tck

Fri Aug 12 13:52:44 +0000 2011 - tweet id 102014660064190466 - #6
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@bellarose0608 Thank you! #tck

Fri Aug 12 13:52:15 +0000 2011 - tweet id 102014534885191680 - #7
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@monicamfochtman RT @TheCoffeeKlatch: Next Friday we will be discussing National Childhood Cancer Awareness Month. The month of September is #ccam. #tck

Fri Aug 12 13:52:14 +0000 2011 - tweet id 102014531450048513 - #8
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@dialdoctors RT @TheCoffeeKlatch: This has been a great conversation. Thanks to every last one of you for being here and participating! #tck

Fri Aug 12 13:51:50 +0000 2011 - tweet id 102014430115659777 - #9
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@TheCoffeeKlatch Next Friday we will be discussing National Childhood Cancer Awareness Month. The month of September is #ccam. #tck

Fri Aug 12 13:51:37 +0000 2011 - tweet id 102014377015779328 - #10
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@TheCoffeeKlatch This has been a great conversation. Thanks to every last one of you for being here and participating! #tck

Fri Aug 12 13:50:20 +0000 2011 - tweet id 102014054356353025 - #11
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@TheCoffeeKlatch RT @bellarose0608: CureSearch for Clinical Trials, MayoClinic and NIH as well #tck

Fri Aug 12 13:48:41 +0000 2011 - tweet id 102013637471911936 - #12
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@TheCoffeeKlatch RT @bellarose0608: I like ped-onc.org, and ACOR most of the time. #tck

Fri Aug 12 13:48:29 +0000 2011 - tweet id 102013589136748546 - #13
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@TheCoffeeKlatch Marianne's mantra really fits: You are your child's best advocate, if not you then who, become an informed educated parent. #tck

Fri Aug 12 13:48:11 +0000 2011 - tweet id 102013514218078209 - #14
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@bellarose0608 CureSearch for Clinical Trials, MayoClinic and NIH as well #tck

Fri Aug 12 13:47:45 +0000 2011 - tweet id 102013404369268736 - #15
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@bellarose0608 I like ped-onc.org, and ACOR most of the time. #tck

Fri Aug 12 13:47:20 +0000 2011 - tweet id 102013299587166208 - #16
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@TheCoffeeKlatch RT @monicamfochtman: @TheCoffeeKlatch ACOR list serv "RhabdoKids" CureSearch and PAC2 were the most helpful at DX #tck

Fri Aug 12 13:46:02 +0000 2011 - tweet id 102012972255285248 - #17
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@cliffsull RT @TheCoffeeKlatch: Everyone communicates and processes differently. Don't stop searching/asking until you fully understand. #tck

Fri Aug 12 13:45:55 +0000 2011 - tweet id 102012942282801152 - #18
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@winklett RT @TheCoffeeKlatch: Everyone communicates and processes differently. Don't stop searching/asking until you fully understand. #tck EXACTLY

Fri Aug 12 13:45:49 +0000 2011 - tweet id 102012918626922496 - #19
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@TheCoffeeKlatch Everyone communicates and processes differently. Don't stop searching/asking until you fully understand. #tck

Fri Aug 12 13:45:31 +0000 2011 - tweet id 102012840155680768 - #20
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@winklett RT @TheCoffeeKlatch: I believe that questions should be asked numerous times. Gather information from several sources. #tck

Fri Aug 12 13:45:30 +0000 2011 - tweet id 102012839312637952 - #21
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@monicamfochtman @TheCoffeeKlatch ACOR list serv "RhabdoKids" CureSearch and PAC2 were the most helpful at DX #tck

Fri Aug 12 13:45:13 +0000 2011 - tweet id 102012765748723712 - #22
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@TheCoffeeKlatch I believe that questions should be asked numerous times. Gather information from several sources. #tck

Fri Aug 12 13:44:41 +0000 2011 - tweet id 102012632285986816 - #23
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@TheCoffeeKlatch @winklett Good morning! #tck

Fri Aug 12 13:43:34 +0000 2011 - tweet id 102012351498289152 - #24
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@TheCoffeeKlatch What is YOUR favorite online resource for information specific to your kiddos #specialneeds? #tck

Fri Aug 12 13:42:46 +0000 2011 - tweet id 102012149299298304 - #25
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@TheCoffeeKlatch What is YOUR favorite online resource for information specific to your kiddos @specialneeds? #tck

Fri Aug 12 13:41:09 +0000 2011 - tweet id 102011741751349248 - #26
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@dialdoctors @barefootglenda When you bring up concerns, Dr should discuss them with you with respect and try to find medically reasonable solution. #tck

Fri Aug 12 13:41:03 +0000 2011 - tweet id 102011715872501760 - #27
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@monicamfochtman @TheCoffeeKlatch MOrning!!! #tck

Fri Aug 12 13:40:41 +0000 2011 - tweet id 102011625434906625 - #28
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@TheCoffeeKlatch RT @monicamfochtman remember that published research is almost 3 yrs old by the time it hits print. & there are always exceptions. #tck #tck

Fri Aug 12 13:39:22 +0000 2011 - tweet id 102011293711605760 - #29
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@TheCoffeeKlatch @monicamfochtman Good morning, lady! #tck

Fri Aug 12 13:38:50 +0000 2011 - tweet id 102011160928329729 - #30
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@TheCoffeeKlatch RT @trishpip: I have heard medical pros advise patients to not google because theyll make themselves upset. #tck

Fri Aug 12 13:38:27 +0000 2011 - tweet id 102011062056001537 - #31
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@TheCoffeeKlatch Yet...... if I want to know what Methemoglobinemia is, I start with Wiki. Then take it where it will.... #tck

Fri Aug 12 13:38:04 +0000 2011 - tweet id 102010969064079360 - #32
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@monicamfochtman It is also imp to remember that published research is almost 3 yrs old by the time it hits print. & there are always exceptions. #tck #tck

Fri Aug 12 13:37:24 +0000 2011 - tweet id 102010798955692032 - #33
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@trishpip I have heard medical pros advise patients to not google because they'll make themselves upset. #tck

Fri Aug 12 13:37:20 +0000 2011 - tweet id 102010783591964673 - #34
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@TheCoffeeKlatch @dialdoctors There are many instances where the entries were severely lacking in current content. #tck

Fri Aug 12 13:36:12 +0000 2011 - tweet id 102010496051445760 - #35
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@dialdoctors About Wiki: For example, patients don't care about compositions or outdated theories. They need useful information that relates to them #tck

Fri Aug 12 13:34:48 +0000 2011 - tweet id 102010144753324032 - #36
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@TheCoffeeKlatch Wiki is my dictionary. It has been very helpful in that respect. #tck

Fri Aug 12 13:34:47 +0000 2011 - tweet id 102010141041360896 - #37
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@dialdoctors @TheCoffeeKlatch Wiki includes so many irrelevant facts that only ppl with health literacy find real value.#tck

Fri Aug 12 13:33:20 +0000 2011 - tweet id 102009777848188928 - #38
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@TheCoffeeKlatch I have been known to Dr Google out of fear. I am an information freak and like to be prepared. It works for me. #tck

Fri Aug 12 13:32:49 +0000 2011 - tweet id 102009645207527424 - #39
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@TheCoffeeKlatch Shall we discuss Wiki? I've heard so much negative chatter about using Wiki. I don't have an opinion either way. #tck

Fri Aug 12 13:30:22 +0000 2011 - tweet id 102009027822747649 - #40
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@TheCoffeeKlatch RT @trishpip: Generally, I use google the way youd use a reference book - to get more information about a topic youre curious about. #tck

Fri Aug 12 13:29:19 +0000 2011 - tweet id 102008763376078848 - #41
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@TheCoffeeKlatch RT @bellarose0608: If U R educated & u bring the situation to ur dr already educated ur conversation & understanding will be productive #tck

Fri Aug 12 13:29:07 +0000 2011 - tweet id 102008713048629248 - #42
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@trishpip Generally, I use google the way you'd use a reference book - to get more information about a topic you're curious about. #tck

Fri Aug 12 13:28:34 +0000 2011 - tweet id 102008577048330240 - #43
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@TheCoffeeKlatch So much information is given to you in chunks. Digesting it is challenging. I take the time and get to know it online. #tck

Fri Aug 12 13:28:05 +0000 2011 - tweet id 102008454461394944 - #44
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@bellarose0608 If you are educated, and u bring the situation to ur doctor already educated ur conversation and understanding will be more productive #tck

Fri Aug 12 13:27:29 +0000 2011 - tweet id 102008303588098049 - #45
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@TheCoffeeKlatch It also comes into play when supporting my community. Yet I always preface any technical discussions w/"This is OUR story." #tck

Fri Aug 12 13:26:57 +0000 2011 - tweet id 102008169504583681 - #46
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@bellarose0608 RT @TheCoffeeKlatch: My intent is to be better educated so I can understand what is going on & have a productive discussion#tck

Fri Aug 12 13:25:50 +0000 2011 - tweet id 102007889891307520 - #47
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@dialdoctors The key is getting to middle ground. Arming yourself with knowledge with all the info out there from those who know & have been there. #tck

Fri Aug 12 13:25:48 +0000 2011 - tweet id 102007880772886528 - #48
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@TheCoffeeKlatch If I understand WHY he has that symptom, I can be better at seeing it appear at a later date. #tck

Fri Aug 12 13:25:33 +0000 2011 - tweet id 102007816906219520 - #49
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@dialdoctors True :) RT @TheCoffeeKlatch: @dialdoctors I think the bigger question is What is your intent? #tck

Fri Aug 12 13:25:07 +0000 2011 - tweet id 102007710156984322 - #50
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@TheCoffeeKlatch My intent is to be better educated so I can understand what is going on with G's body and have a productive discussion. #tck

Fri Aug 12 13:24:15 +0000 2011 - tweet id 102007490014744576 - #51
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@bellarose0608 RT @dialdoctors: I think the real debate gets down to: Who do you trust more? Your doctor or Dr. Google?#tck

Fri Aug 12 13:23:40 +0000 2011 - tweet id 102007342761123840 - #52
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@TheCoffeeKlatch @dialdoctors I think the bigger question is What is your intent?#tck

Fri Aug 12 13:23:36 +0000 2011 - tweet id 102007327380619265 - #53
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@TheCoffeeKlatch RT @dialdoctors: While using Dr. Google for medical needs & dx isnt the best route, its great to have a hand from Google for research. #tck

Fri Aug 12 13:23:07 +0000 2011 - tweet id 102007204953079809 - #54
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@dialdoctors I think the real debate gets down to: Who do you trust more? Your doctor or Dr. Google? #tck

Fri Aug 12 13:22:44 +0000 2011 - tweet id 102007106785378306 - #55
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@TheCoffeeKlatch @trishpip Good morning! #tck

Fri Aug 12 13:21:57 +0000 2011 - tweet id 102006913205669889 - #56
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@bellarose0608 RT @dialdoctors: Physicians and patients should be aware that the quality of information available online varies greatly.>YES! #tck

Fri Aug 12 13:21:31 +0000 2011 - tweet id 102006802144698368 - #57
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@dialdoctors RT @youarelovedTSS: @TheCoffeeKlatch exactly! quality of online information varies widely -- peer reviewed journals are always ideal #tck

Fri Aug 12 13:21:23 +0000 2011 - tweet id 102006767952736257 - #58
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@TheCoffeeKlatch For Gregory's disease The Blood Journal has been an awesome resource. http://bloodjournal.hematologylibrary.org/ #tck

Fri Aug 12 13:21:16 +0000 2011 - tweet id 102006739725062145 - #59
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@bellarose0608 RT @TheCoffeeKlatch: "docs dont know EVERYTHING there is to know?" >we've seen enough mis-dx to know this can be true at times. #tck

Fri Aug 12 13:21:04 +0000 2011 - tweet id 102006690798505984 - #60
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@trishpip RT @TheCoffeeKlatch: I've also learned to Google better. I seem to get better quality information using proper terminology. #tck

Fri Aug 12 13:20:56 +0000 2011 - tweet id 102006656778514432 - #61
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@dialdoctors While using Dr. Google for medical needs & diagnoses isn't the best route to take, it's great to have a hand from Google for research. #tck

Fri Aug 12 13:20:45 +0000 2011 - tweet id 102006609131216896 - #62
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@TheCoffeeKlatch RT @dialdoctors: Physicians and patients should be aware that the quality of information available online varies greatly. #tck

Fri Aug 12 13:20:12 +0000 2011 - tweet id 102006469809020928 - #63
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@TheCoffeeKlatch @RiversidePD Good morning and welcome! #tck

Fri Aug 12 13:19:54 +0000 2011 - tweet id 102006393602715648 - #64
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@dialdoctors Physicians and patients should be aware that the quality of information available online varies greatly. #tck

Fri Aug 12 13:19:34 +0000 2011 - tweet id 102006311402741760 - #65
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@TheCoffeeKlatch If something I've learned doesn't make sense to me, I ALWAYS ask a professional for clarification. #tck

Fri Aug 12 13:19:19 +0000 2011 - tweet id 102006248286855170 - #66
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@TheCoffeeKlatch My heaviest google usage is simply to understand terminology. Physiology, too. #tck

Fri Aug 12 13:18:15 +0000 2011 - tweet id 102005981684314113 - #67
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@TheCoffeeKlatch I've also learned to Google better. I seem to get better quality information using proper terminology. #tck

Fri Aug 12 13:17:22 +0000 2011 - tweet id 102005758715109376 - #68
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@youarelovedTSS @TheCoffeeKlatch everyone should be focused on continuing to learn and grow - including drs #tck

Fri Aug 12 13:16:44 +0000 2011 - tweet id 102005599721631744 - #69
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@TheCoffeeKlatch Do I dare say that docs don't know EVERYTHING there is to know? I think an educated advocate is a key player. Always questioning. #tck

Fri Aug 12 13:15:36 +0000 2011 - tweet id 102005315163267072 - #70
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@bellarose0608 One symptom found leads to another dx, leads to another, etc-a vicious cycle, and u dx yourself w/a terrible disease-go to the doctor! #tck

Fri Aug 12 13:14:51 +0000 2011 - tweet id 102005122799910912 - #71
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@TheCoffeeKlatch RT @dialdoctors:Today, 37% of American adults occas. use the Internet 2 self-dx illness>how many of those incorrectly dx themselves? #tck

Fri Aug 12 13:14:09 +0000 2011 - tweet id 102004949101191169 - #72
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@TheCoffeeKlatch Yes, I am guilty of 'symptom searching'. Wanting to match symptoms to a cause.... #tck

Fri Aug 12 13:13:10 +0000 2011 - tweet id 102004700479619072 - #73
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@bellarose0608 RT @dialdoctors:Today, 37% of American adults occas. use the Internet 2 self-dx illness>how many of those incorrectly dx themselves? #tck

Fri Aug 12 13:12:14 +0000 2011 - tweet id 102004464977854464 - #74
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@TheCoffeeKlatch RT @youarelovedTSS a friend is fond of saying 87% of all statistics quoted in casual conversation are either misunderstood or made up #tck

Fri Aug 12 13:12:02 +0000 2011 - tweet id 102004413765386240 - #75
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@youarelovedTSS @TheCoffeeKlatch unless you a resource that allows you to access them you are pragmatically "locked out" #tck

Fri Aug 12 13:11:36 +0000 2011 - tweet id 102004308639358976 - #76
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@TheCoffeeKlatch @dialdoctors I like that 'six percent ADMIT'. The real percentage is significantly higher, I assure you! #tck

Fri Aug 12 13:11:17 +0000 2011 - tweet id 102004226548449280 - #77
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@youarelovedTSS @dialdoctors a good friend is fond of saying 87% of all statistics quoted in casual conversation are either misunderstood or made up #tck

Fri Aug 12 13:10:52 +0000 2011 - tweet id 102004122538090496 - #78
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@TheCoffeeKlatch @youarelovedTSS Good morning! I only wish it was easier to access them. #tck

Fri Aug 12 13:10:26 +0000 2011 - tweet id 102004011544219648 - #79
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@dialdoctors Six percent admit they always seek health advice online, where professionals and nonprofessionals dispense advice at will. #tck

Fri Aug 12 13:10:10 +0000 2011 - tweet id 102003944687013888 - #80
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@TheCoffeeKlatch My Mantra: There has never been another Gregory with this exact disease, going through this exact treatment. Stat of ONE. #tck

Fri Aug 12 13:09:50 +0000 2011 - tweet id 102003861539135488 - #81
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@dialdoctors Today, 37 percent of American adults at least occasionally use the Internet to self-diagnose an illness. #tck

Fri Aug 12 13:09:47 +0000 2011 - tweet id 102003849740550144 - #82
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@youarelovedTSS @TheCoffeeKlatch exactly! quality of online information varies widely -- peer reviewed journals are always ideal #tck

Fri Aug 12 13:09:31 +0000 2011 - tweet id 102003780320632832 - #83
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@TheCoffeeKlatch RT @bellarose0608: Stats dont always hold much water, as we find out early when it comes to certain diagnoses #tck

Fri Aug 12 13:08:55 +0000 2011 - tweet id 102003629598314496 - #84
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@TheCoffeeKlatch @inkscrblr Good morning! Thanks for being here. #tck

Fri Aug 12 13:08:21 +0000 2011 - tweet id 102003487633719296 - #85
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@bellarose0608 Stats don't always hold much water, as we find out early when it comes to certain diagnoses #tck

Fri Aug 12 13:08:15 +0000 2011 - tweet id 102003463847804928 - #86
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@TheCoffeeKlatch A personal frustration....medical/journal articles are often available by paid subscription. I understand why, but..... #tck

Fri Aug 12 13:07:42 +0000 2011 - tweet id 102003326253662208 - #87
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@inkscrblr RT @TheCoffeeKlatch: Through times of anxiety and wanting knowledge I seek out Dr Google. #tck

Fri Aug 12 13:07:32 +0000 2011 - tweet id 102003282523865089 - #88
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@TheCoffeeKlatch @dialdoctors Morning! Happy to have you along! #tck

Fri Aug 12 13:06:39 +0000 2011 - tweet id 102003059089080321 - #89
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@TheCoffeeKlatch I am also always on the lookout for families with G's same dx. Wanting to connect and offer support. #tck

Fri Aug 12 13:06:11 +0000 2011 - tweet id 102002945033375744 - #90
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@dialdoctors Good morning Mindi! So glad to be joining on this Friday morning. I definitely Dr Google? More coming up. @TheCoffeeKlatch #tck

Fri Aug 12 13:06:00 +0000 2011 - tweet id 102002897063124993 - #91
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@bellarose0608 RT @TheCoffeeKlatch: @bellarose0608 I google like crazy about Gs health.Take it w/a grain of salt & always clarify w/doctors>DEFINITELY #tck

Fri Aug 12 13:05:31 +0000 2011 - tweet id 102002774836908033 - #92
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@TheCoffeeKlatch My greatest lesson was to surrender to the fact that G is a statistic of ONE. I do not put any weight in stats. #tck

Fri Aug 12 13:04:45 +0000 2011 - tweet id 102002583467597824 - #93
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@TheCoffeeKlatch @bellarose0608 I google like crazy about G's health. Take it with a grain of salt and always clarify with his doctors. #tck

Fri Aug 12 13:03:35 +0000 2011 - tweet id 102002290134753280 - #94
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@bellarose0608 And certain "minor" medical issues #tck

Fri Aug 12 13:03:35 +0000 2011 - tweet id 102002289417519104 - #95
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@bellarose0608 But I do google when I want to know about specific behaviors or issues with my kiddos. #tck

Fri Aug 12 13:03:02 +0000 2011 - tweet id 102002150871277568 - #96
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@bellarose0608 But I do pick & choose when and what I google - I specifically did NOT google when my daughter was diagnosed with Wilms-2 much bad info #tck

Fri Aug 12 13:02:20 +0000 2011 - tweet id 102001975599702018 - #97
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@TheCoffeeKlatch We want information, comfort, support, we want to KNOW the details about our #specialneeds kiddos. #tck

Fri Aug 12 13:02:06 +0000 2011 - tweet id 102001914216062976 - #98
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@TheCoffeeKlatch @bellarose0608 Morning! Thanks for being here! #tck

Fri Aug 12 13:01:05 +0000 2011 - tweet id 102001661920284672 - #99
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@TheCoffeeKlatch Through times of anxiety and wanting knowledge I seek out Dr Google. #tck

Fri Aug 12 13:00:41 +0000 2011 - tweet id 102001559759622144 - #100
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@bellarose0608 Morning Mindi! I Google daily!!! #tck

Fri Aug 12 13:00:29 +0000 2011 - tweet id 102001508526198785 - #101
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@TheCoffeeKlatch Good morning and WELCOME! Mindi, here. Do you Dr Google? I sure do. #tck

Fri Aug 12 13:00:05 +0000 2011 - tweet id 102001407967768577 - #102
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@TheCoffeeKlatch To join our automated chatroom go tohttp://tweetchat.com/room/tck sign in - click authorize app - turn your speed down to 5 seconds #tck

Fri Aug 12 12:54:34 +0000 2011 - tweet id 102000019321798656 - #103
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@LornadEnt Help for Struggling Readers: The Reading Focus Card Receives Prestigious Award http://t.co/KySKFSW #tck #reading #readingproblems #dyslexia

Fri Aug 12 12:45:40 +0000 2011 - tweet id 101997778980454400 - #104
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@TheCoffeeKlatch Grab your coffee! TweetChat in 20 minutes. Do you Dr Google?#Childhoodcaner #specialneeds @thecoffeeklatch #tck http://ow.ly/61zhx #tck

Fri Aug 12 12:40:43 +0000 2011 - tweet id 101996532722712576 - #105
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@magnificentmndi Grab your coffee! TweetChat in 20 minutes. Do you Dr Google?#Childhoodcaner #specialneeds @thecoffeeklatch #tck http://ow.ly/61zhx

Fri Aug 12 12:39:52 +0000 2011 - tweet id 101996319782088707 - #106
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