Tuesday, August 23, 2011

46 Mommas Call To Action from FaceBook


Hello Childhood Cancer Supporters~

As you know, 46 Mommas will be shaving their heads on September 21, in Washington, DC at Union Station during rush hour. This venue was carefully selected due to it's potential for raising a tremendous amount of awareness surrounding the need for childhood cancer research. 

This date was also carefully selected. The Pediatric Cancer Caucus is Friday, September 23, in Washington, DC. The 46 Mommas have been asked to attend this amazing event. The presence of 46 Mommas at the Pediatric Cancer Caucus send a message, loud and clear, that Childhood Cancer matters and we will be heard.

People Against Childhood Cancer (PAC2) is holding a workshop on Thursday, September 22, in Washington, DC. Collaborating with the childhood cancer community. Via PAC2: "This Fall’s workshop will build on the success of the Spring 2011 Workshop by continuing to focus on significant issues and opportunities facing the childhood cancer community and how our community can collectively respond."

The childhood cancer community is bringing our cause to our nation's capital. This week of events will be a resounding call to action to every person who crosses our paths.

Along with the shave event, 46 Mommas will be hosting an invitation only, VIP "Ask Me Why I'm Bald" reception. This reception will run concurrently with the shave event. The purpose of 46 Mommas includes raising awareness. In order to do this on a large scale, we have invited celebrities, congressional representatives, media celebrities and key players from the world of childhood cancer research. These invitees can help us to further our cause of funding childhood cancer research. The need for a private space for these invitees is crucial. We cannot expect these honored guests to sit amongst the masses upon benches in front of the shave stage. The childhood cancer community needs their support and the support of the communities they represent. 46 Mommas are bringing it to Washington, DC.

Now we need you. We are falling short of the funds needed to cover the expense for this VIP reception. We need sponsors to help us cover the cost. We need a handful of sponsorships in the $250 - $500 range. All sponsorships are tax deductible and an In Kind donation to St Baldrick's. 

We have nearly 9,500 FaceBook fans of 46 Mommas Shave For The Brave. We are asking that each and every one of you help us to fund this reception, in order to bring this phenomenal week of raising awareness and funds for childhood cancer research to Washington, DC. 

This is our call to action. It's too late for our kids, the kids of tomorrow are counting on us. 

Contact us at: sponsorship@46mommas.com

46 Mommas sponsorship menu can be found here: http://46mommas.com/index.php/sponsors-who-give/become-a-sponsor.html

Respectfully, humbly, and lovingly,
Mindi Finch
Class of '11 46 Momma Team Leader 

Diagnosiversary ~ Listen To Your Mother Show Spokane 2011


Below is my essay reading from Listen To Your Mother Show Spokane 2011

One year.  One year ago, today, Gregory, age 3, was diagnosed with cancer.

Carrying him in my arms, we made the walk, down the longest hallway I've ever walked, from our room in peds intermediate to the procedure room.  I placed his weak and sick little body on the gurney and stood back and watched.  Watched as a team of staff hooked him up to a plethora of strange things.

I stood silently as the anesthesiologist began Gregory’s sedation.

I stood silently and watched, as they flipped his little body over.  Pointing his hip to the ceiling.  Baring his backside for all to see.  Prepping the area with antiseptic.

 I stood there silently.

I clutched Gregory's blanket, watching in horror.

The curtains were drawn and I was saved from seeing the actual Bone Marrow Aspirate.  I remember reaching out for Larry's hand.  I remember silent tears gathering in the corners of my eyes.  Shocked that THIS is where I was.  Terrified.

This was Wednesday morning and I had been with Gregory, ever since he was admitted on Monday. The staff had told me that if his marrow showed no signs of leukemia, he would remain in peds intermediate, until they figured out what was wrong with Gregory.  If his marrow did prove to be leukemic, he would be immediately moved  to the Pediatric Oncology Unit.

The Bone Marrow Aspirate didn't take more than ten minutes to complete.

After a flurry of activity myself, Daddy, my Mom and Gregory were left alone with the the nurse who was monitoring him. We stood around him, like a vigil.  We had  two hours of nervous and stilted conversation.

Constantly watching the monitors, as Gregory slept off the sedation.

I wanted nothing more, than to climb upon that gurney and snuggle him out of it.  They wanted his airway free, so I had to stand at his side, hold his hand, grip his leg, rub his back, stroke his hair.  Gaze at his precious face.

Towards the end of our waiting, Larry needed quarters to feed the meter.   He was out of change and I knew I had plenty in my wallet.  I took off, again, down that long hallway towards our room.  As I approached, I noticed movement inside.

A cart parked halfway in, halfway out of the room.

I came to a screeching halt at the doorway and froze. Unable to catch my breath.  Lights, blinking in my peripheral vision.  My heart pounding so hard in my ears, I was sure you could have heard it had you been standing near me.

The bed was elevated and stripped to it's rubber covered mattress.  There was a staff member scrubbing the room.  Our belongings, that I had neatly placed at the end of the couch?  Gone.  Not an item in sight.
At that moment........

I knew.

I don’t recall Dr. Reynolds' exact words, something close is "We've got a long road."

Suffocating, hiccupping, stifling, chest-searing sobs.
Trying to breath and keep my cool.
Wanting to unleash this beast that is now lodged, permanently in my solar plexus.
Compressing my lungs.

knee-jerk questions.
Chemo? Yes.
Hair loss? Yes.
When? Immediately.

Gregory stirred more and more. He was stable enough to move. I gathered his little self and we proceeded through the maze that led to the Pediatric Oncology Unit.

Numb, in shock and exhausted, we were escorted to purple room 308, right in front of the nurses station.

All of our belongings were there. The bed was turned down and covered with a new, soft fleece blanket. Our first "gift" from the world of Childhood Cancer.

Next to the bed was a huge, wing backed recliner.  I clung to Gregory and sat down in it.  Not wanting to release him.

The words resonating through my brain, “Your child has cancer.”



Friday, August 19, 2011

TweetChat Transcript for Friday, August 19 Topic: Childhood Cancer Awareness Month #ccam


@TheCoffeeKlatch Mindi, signing off. Asking, listening, witnessing. To know the road ahead, ask those coming back. ~Chinese Proverb #ccam #tck

Fri Aug 19 13:58:59 +0000 2011 - tweet id 104552945034596354 - #1
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@TheCoffeeKlatch Thank you for being with us today! Wear your gold in September, 'cause 'Kids get cancer, too.'. #ccam #childhoodcancer #tck

Fri Aug 19 13:55:14 +0000 2011 - tweet id 104552003681779712 - #2
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@TheCoffeeKlatch Always w/the spirit of Marianne's words: You are your child's best advocate, if not you then who, become an informed educated parent. #tck

Fri Aug 19 13:51:04 +0000 2011 - tweet id 104550953344184320 - #3
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@TheCoffeeKlatch Next Friday's #tweetchat we will be talking about @pac_2 People Against #childhoodcancerhttp://t.co/kD3Lvko #ccam #tck

Fri Aug 19 13:49:00 +0000 2011 - tweet id 104550431992184832 - #4
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@FunandFunction Tune in~Introducing @thecoffeeklatch sister network Special Needs Talk Radio launching September 6th specialneedstalkradio.com #TCK #autism

Fri Aug 19 13:36:25 +0000 2011 - tweet id 104547267708588033 - #5
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@TheCoffeeKlatch Contact @accoorg and have a PJammin event at your local school! #ccam http://t.co/1WGAq5s #childhoodcancer #tck

Fri Aug 19 13:32:46 +0000 2011 - tweet id 104546350212984832 - #6
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@TheCoffeeKlatch For all on FB, get ready for September - #ChildhoodCancerAwareness Month #CCAM - by clicking "Attending" @ http://t.co/q4PJSqK #tck

Fri Aug 19 13:30:03 +0000 2011 - tweet id 104545664242941952 - #7
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@TheCoffeeKlatch Local #ccam events can also be found through @alexslemonade, @stbaldricks & @cookies4kids. #tck

Fri Aug 19 13:28:54 +0000 2011 - tweet id 104545375238619136 - #8
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@TheCoffeeKlatch @AmayasAngels Good morning and welcome! #tck

Fri Aug 19 13:24:24 +0000 2011 - tweet id 104544242092883968 - #9
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@AmayasAngels RT @46mommas: RT @TheCoffeeKlatch: Sept is National #ccamin the US. Gold is the color for #childhoodcancer awareness. #tck

Fri Aug 19 13:23:49 +0000 2011 - tweet id 104544094516293632 - #10
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@TheCoffeeKlatch This is the presidential proclamation from #ccam in '10.http://t.co/XDEMRA0 #tck

Fri Aug 19 13:22:51 +0000 2011 - tweet id 104543853620637697 - #11
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@RaisingASDKids RT @TheCoffeeKlatch: Sept is National #ccam in the US. Gold is the color for #childhoodcancer awareness. #tck

Fri Aug 19 13:19:54 +0000 2011 - tweet id 104543110952009728 - #12
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@TheCoffeeKlatch @RaisingASDKids Morning my dear! #tck

Fri Aug 19 13:19:47 +0000 2011 - tweet id 104543082460094465 - #13
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@TheCoffeeKlatch If you are looking for local #ccam events, check with your @accoorg chapter. http://t.co/Yp9HzLz #tck

Fri Aug 19 13:19:21 +0000 2011 - tweet id 104542972544163842 - #14
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@RaisingASDKids RT @TheCoffeeKlatch: The Pediatric Cancer Caucus is being held during #ccam. September 23, in Washington, DC. #tck

Fri Aug 19 13:18:53 +0000 2011 - tweet id 104542854508056576 - #15
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@TheCoffeeKlatch Did you know that @46mommas will be in DC, at Union Station on Sept 21, shaving their heads for #ccam with @stbaldricks? #tck

Fri Aug 19 13:17:25 +0000 2011 - tweet id 104542484138438656 - #16
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@TheCoffeeKlatch @hotdog_mike Morning Mr Mike! Do you have any special#ccam events for September? #tck

Fri Aug 19 13:15:55 +0000 2011 - tweet id 104542107754176512 - #17
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@TheCoffeeKlatch The Pediatric Cancer Caucus is being held during #ccam. September 23, in Washington, DC. #tck

Fri Aug 19 13:15:11 +0000 2011 - tweet id 104541921527074816 - #18
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@hotdog_mike RT @46mommas: RT @TheCoffeeKlatch: Sept is National #ccam in the US. Gold is the color for #childhoodcancer awareness. #tck

Fri Aug 19 13:14:52 +0000 2011 - tweet id 104541842263126018 - #19
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@TheCoffeeKlatch @46mommas Morning, Mommas! Sending oodles of LOVE your way! #tck

Fri Aug 19 13:13:59 +0000 2011 - tweet id 104541619906281472 - #20
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@46mommas RT @TheCoffeeKlatch: Sept is National #ccam in the US. Gold is the color for #childhoodcancer awareness. #tck

Fri Aug 19 13:12:26 +0000 2011 - tweet id 104541229961838592 - #21
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@TheCoffeeKlatch Our local @accoorg chapter petitions our city's govt to proclaim Sept as #ccam. Did you know you could do that? #tck

Fri Aug 19 13:10:47 +0000 2011 - tweet id 104540817057775616 - #22
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@TheCoffeeKlatch The purpose of #ccam is to raise awareness that 'Kids get cancer, too.' and the need to fund #childhoodcancer research. #tck

Fri Aug 19 13:09:18 +0000 2011 - tweet id 104540443865399296 - #23
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@TheCoffeeKlatch I am participating in several #ccam events in Sept. @46mommas, @yogapeoplecare and our local @accoorg. Lots going on. #tck

Fri Aug 19 13:08:23 +0000 2011 - tweet id 104540213103177728 - #24
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@TheCoffeeKlatch Sept is National #ccam in the US. Gold is the color for#childhoodcancer awareness. #tck

Fri Aug 19 13:06:23 +0000 2011 - tweet id 104539710210326528 - #25
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@TheCoffeeKlatch There are so many days/months of awareness to remember.#ccam is especially important to our family. Gregory is our survivor. #tck

Fri Aug 19 13:04:33 +0000 2011 - tweet id 104539248014798848 - #26
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@TheCoffeeKlatch Mindi, here! Thanks for joining us. The hashtag that we use for#childhoodcancer awareness month is #ccam#tck

Fri Aug 19 13:02:57 +0000 2011 - tweet id 104538846703779841 - #27
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@TheCoffeeKlatch Welcome to another #childhoodcancer #tweetchat!#childhoodcancer awareness month is Sept. Did you know? What are YOU doing?#ccam #tck

Fri Aug 19 13:01:01 +0000 2011 - tweet id 104538356809089025 - #28
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@TheCoffeeKlatch To join our automated chatroom go to http://t.co/wlTvGk0 sign in - click authorize app - turn your speed down to 5 seconds #tck

Fri Aug 19 12:59:17 +0000 2011 - tweet id 104537923776561152 - #29
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@AmayasAngels RT @magnificentmndi: Grab your coffee! #tweetchat in 20 minutes! Sept is #childhoodcancer awareness month. R you aware? #ccam #tck http: ...

Fri Aug 19 12:46:09 +0000 2011 - tweet id 104534616681095168 - #30
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@TheCoffeeKlatch Grab your coffee! #tweetchat in 20 minutes! Sept is#childhoodcancer awareness month. Are you aware? #ccam http://t.co/wlTvGk0 #tck

Fri Aug 19 12:40:31 +0000 2011 - tweet id 104533198037450752 - #31
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Friday, August 12, 2011

TweetChat transcript for Friday, August 12. Topic: Do you Dr Google. The good, the bad, the ugly.

TweetChat transcript for Friday, August 12. Topic: Do you Dr Google. The good, the bad, the ugly.
*Tweets are in reverse chronological order. Please start from the bottom.
Perma Link: #tck TweetChat Transcript 8/12/11


@TheCoffeeKlatch Enjoy your week. Until next time, Mindi signing off. You can always reach me here @magnificentmndi Love, love, love... #tck

Fri Aug 12 13:59:24 +0000 2011 - tweet id 102016337412497409 - #2
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@TheCoffeeKlatch As always, questioning, listening and responding. *To know the road ahead, ask those coming back. ~Chinese Proverb #tck

Fri Aug 12 13:56:36 +0000 2011 - tweet id 102015629460119552 - #3
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@TheCoffeeKlatch As always, questioning, listening and responding. *To know the road ahead, ask those coming back. ~Chinese Proverb #tck

Fri Aug 12 13:56:36 +0000 2011 - tweet id 102015629460119552 - #4
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@TheCoffeeKlatch Friday 8/19 TweetChat. September is National #childhoodcancerAwareness Month. What is happening around the nation for #ccam#tck

Fri Aug 12 13:54:30 +0000 2011 - tweet id 102015102798151680 - #5
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@TheCoffeeKlatch We will be sharing events/activities for #ccam. Be sure to join us to share your communities happenings. #childhoodcancer #tck

Fri Aug 12 13:52:44 +0000 2011 - tweet id 102014660064190466 - #6
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@bellarose0608 Thank you! #tck

Fri Aug 12 13:52:15 +0000 2011 - tweet id 102014534885191680 - #7
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@monicamfochtman RT @TheCoffeeKlatch: Next Friday we will be discussing National Childhood Cancer Awareness Month. The month of September is #ccam#tck

Fri Aug 12 13:52:14 +0000 2011 - tweet id 102014531450048513 - #8
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@dialdoctors RT @TheCoffeeKlatch: This has been a great conversation. Thanks to every last one of you for being here and participating! #tck

Fri Aug 12 13:51:50 +0000 2011 - tweet id 102014430115659777 - #9
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@TheCoffeeKlatch Next Friday we will be discussing National Childhood Cancer Awareness Month. The month of September is #ccam#tck

Fri Aug 12 13:51:37 +0000 2011 - tweet id 102014377015779328 - #10
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@TheCoffeeKlatch This has been a great conversation. Thanks to every last one of you for being here and participating! #tck

Fri Aug 12 13:50:20 +0000 2011 - tweet id 102014054356353025 - #11
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@TheCoffeeKlatch RT @bellarose0608: CureSearch for Clinical Trials, MayoClinic and NIH as well #tck

Fri Aug 12 13:48:41 +0000 2011 - tweet id 102013637471911936 - #12
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@TheCoffeeKlatch RT @bellarose0608: I like ped-onc.org, and ACOR most of the time. #tck

Fri Aug 12 13:48:29 +0000 2011 - tweet id 102013589136748546 - #13
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@TheCoffeeKlatch Marianne's mantra really fits: You are your child's best advocate, if not you then who, become an informed educated parent. #tck

Fri Aug 12 13:48:11 +0000 2011 - tweet id 102013514218078209 - #14
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@bellarose0608 CureSearch for Clinical Trials, MayoClinic and NIH as well #tck

Fri Aug 12 13:47:45 +0000 2011 - tweet id 102013404369268736 - #15
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@bellarose0608 I like ped-onc.org, and ACOR most of the time. #tck

Fri Aug 12 13:47:20 +0000 2011 - tweet id 102013299587166208 - #16
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@TheCoffeeKlatch RT @monicamfochtman: @TheCoffeeKlatch ACOR list serv "RhabdoKids" CureSearch and PAC2 were the most helpful at DX #tck

Fri Aug 12 13:46:02 +0000 2011 - tweet id 102012972255285248 - #17
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@cliffsull RT @TheCoffeeKlatch: Everyone communicates and processes differently. Don't stop searching/asking until you fully understand. #tck

Fri Aug 12 13:45:55 +0000 2011 - tweet id 102012942282801152 - #18
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@winklett RT @TheCoffeeKlatch: Everyone communicates and processes differently. Don't stop searching/asking until you fully understand. #tck EXACTLY

Fri Aug 12 13:45:49 +0000 2011 - tweet id 102012918626922496 - #19
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@TheCoffeeKlatch Everyone communicates and processes differently. Don't stop searching/asking until you fully understand. #tck

Fri Aug 12 13:45:31 +0000 2011 - tweet id 102012840155680768 - #20
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@winklett RT @TheCoffeeKlatch: I believe that questions should be asked numerous times. Gather information from several sources. #tck

Fri Aug 12 13:45:30 +0000 2011 - tweet id 102012839312637952 - #21
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@monicamfochtman @TheCoffeeKlatch ACOR list serv "RhabdoKids" CureSearch and PAC2 were the most helpful at DX #tck

Fri Aug 12 13:45:13 +0000 2011 - tweet id 102012765748723712 - #22
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@TheCoffeeKlatch I believe that questions should be asked numerous times. Gather information from several sources. #tck

Fri Aug 12 13:44:41 +0000 2011 - tweet id 102012632285986816 - #23
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@TheCoffeeKlatch @winklett Good morning! #tck

Fri Aug 12 13:43:34 +0000 2011 - tweet id 102012351498289152 - #24
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@TheCoffeeKlatch What is YOUR favorite online resource for information specific to your kiddos #specialneeds#tck

Fri Aug 12 13:42:46 +0000 2011 - tweet id 102012149299298304 - #25
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@TheCoffeeKlatch What is YOUR favorite online resource for information specific to your kiddos @specialneeds? #tck

Fri Aug 12 13:41:09 +0000 2011 - tweet id 102011741751349248 - #26
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@dialdoctors @barefootglenda When you bring up concerns, Dr should discuss them with you with respect and try to find medically reasonable solution. #tck

Fri Aug 12 13:41:03 +0000 2011 - tweet id 102011715872501760 - #27
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@monicamfochtman @TheCoffeeKlatch MOrning!!! #tck

Fri Aug 12 13:40:41 +0000 2011 - tweet id 102011625434906625 - #28
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@TheCoffeeKlatch RT @monicamfochtman remember that published research is almost 3 yrs old by the time it hits print. & there are always exceptions. #tck #tck

Fri Aug 12 13:39:22 +0000 2011 - tweet id 102011293711605760 - #29
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@TheCoffeeKlatch @monicamfochtman Good morning, lady! #tck

Fri Aug 12 13:38:50 +0000 2011 - tweet id 102011160928329729 - #30
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@TheCoffeeKlatch RT @trishpip: I have heard medical pros advise patients to not google because theyll make themselves upset. #tck

Fri Aug 12 13:38:27 +0000 2011 - tweet id 102011062056001537 - #31
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@TheCoffeeKlatch Yet...... if I want to know what Methemoglobinemia is, I start with Wiki. Then take it where it will.... #tck

Fri Aug 12 13:38:04 +0000 2011 - tweet id 102010969064079360 - #32
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@monicamfochtman It is also imp to remember that published research is almost 3 yrs old by the time it hits print. & there are always exceptions. #tck #tck

Fri Aug 12 13:37:24 +0000 2011 - tweet id 102010798955692032 - #33
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@trishpip I have heard medical pros advise patients to not google because they'll make themselves upset. #tck

Fri Aug 12 13:37:20 +0000 2011 - tweet id 102010783591964673 - #34
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@TheCoffeeKlatch @dialdoctors There are many instances where the entries were severely lacking in current content. #tck

Fri Aug 12 13:36:12 +0000 2011 - tweet id 102010496051445760 - #35
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@dialdoctors About Wiki: For example, patients don't care about compositions or outdated theories. They need useful information that relates to them #tck

Fri Aug 12 13:34:48 +0000 2011 - tweet id 102010144753324032 - #36
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@TheCoffeeKlatch Wiki is my dictionary. It has been very helpful in that respect. #tck

Fri Aug 12 13:34:47 +0000 2011 - tweet id 102010141041360896 - #37
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@dialdoctors @TheCoffeeKlatch Wiki includes so many irrelevant facts that only ppl with health literacy find real value.#tck

Fri Aug 12 13:33:20 +0000 2011 - tweet id 102009777848188928 - #38
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@TheCoffeeKlatch I have been known to Dr Google out of fear. I am an information freak and like to be prepared. It works for me. #tck

Fri Aug 12 13:32:49 +0000 2011 - tweet id 102009645207527424 - #39
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@TheCoffeeKlatch Shall we discuss Wiki? I've heard so much negative chatter about using Wiki. I don't have an opinion either way. #tck

Fri Aug 12 13:30:22 +0000 2011 - tweet id 102009027822747649 - #40
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@TheCoffeeKlatch RT @trishpip: Generally, I use google the way youd use a reference book - to get more information about a topic youre curious about. #tck

Fri Aug 12 13:29:19 +0000 2011 - tweet id 102008763376078848 - #41
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@TheCoffeeKlatch RT @bellarose0608: If U R educated & u bring the situation to ur dr already educated ur conversation & understanding will be productive #tck

Fri Aug 12 13:29:07 +0000 2011 - tweet id 102008713048629248 - #42
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@trishpip Generally, I use google the way you'd use a reference book - to get more information about a topic you're curious about. #tck

Fri Aug 12 13:28:34 +0000 2011 - tweet id 102008577048330240 - #43
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@TheCoffeeKlatch So much information is given to you in chunks. Digesting it is challenging. I take the time and get to know it online. #tck

Fri Aug 12 13:28:05 +0000 2011 - tweet id 102008454461394944 - #44
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@bellarose0608 If you are educated, and u bring the situation to ur doctor already educated ur conversation and understanding will be more productive #tck

Fri Aug 12 13:27:29 +0000 2011 - tweet id 102008303588098049 - #45
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@TheCoffeeKlatch It also comes into play when supporting my community. Yet I always preface any technical discussions w/"This is OUR story." #tck

Fri Aug 12 13:26:57 +0000 2011 - tweet id 102008169504583681 - #46
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@bellarose0608 RT @TheCoffeeKlatch: My intent is to be better educated so I can understand what is going on & have a productive discussion#tck

Fri Aug 12 13:25:50 +0000 2011 - tweet id 102007889891307520 - #47
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@dialdoctors The key is getting to middle ground. Arming yourself with knowledge with all the info out there from those who know & have been there. #tck

Fri Aug 12 13:25:48 +0000 2011 - tweet id 102007880772886528 - #48
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@TheCoffeeKlatch If I understand WHY he has that symptom, I can be better at seeing it appear at a later date. #tck

Fri Aug 12 13:25:33 +0000 2011 - tweet id 102007816906219520 - #49
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@dialdoctors True :) RT @TheCoffeeKlatch: @dialdoctors I think the bigger question is What is your intent? #tck

Fri Aug 12 13:25:07 +0000 2011 - tweet id 102007710156984322 - #50
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@TheCoffeeKlatch My intent is to be better educated so I can understand what is going on with G's body and have a productive discussion. #tck

Fri Aug 12 13:24:15 +0000 2011 - tweet id 102007490014744576 - #51
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@bellarose0608 RT @dialdoctors: I think the real debate gets down to: Who do you trust more? Your doctor or Dr. Google?#tck

Fri Aug 12 13:23:40 +0000 2011 - tweet id 102007342761123840 - #52
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@TheCoffeeKlatch @dialdoctors I think the bigger question is What is your intent?#tck

Fri Aug 12 13:23:36 +0000 2011 - tweet id 102007327380619265 - #53
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@TheCoffeeKlatch RT @dialdoctors: While using Dr. Google for medical needs & dx isnt the best route, its great to have a hand from Google for research. #tck

Fri Aug 12 13:23:07 +0000 2011 - tweet id 102007204953079809 - #54
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@dialdoctors I think the real debate gets down to: Who do you trust more? Your doctor or Dr. Google? #tck

Fri Aug 12 13:22:44 +0000 2011 - tweet id 102007106785378306 - #55
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@TheCoffeeKlatch @trishpip Good morning! #tck

Fri Aug 12 13:21:57 +0000 2011 - tweet id 102006913205669889 - #56
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@bellarose0608 RT @dialdoctors: Physicians and patients should be aware that the quality of information available online varies greatly.>YES! #tck

Fri Aug 12 13:21:31 +0000 2011 - tweet id 102006802144698368 - #57
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@dialdoctors RT @youarelovedTSS: @TheCoffeeKlatch exactly! quality of online information varies widely -- peer reviewed journals are always ideal #tck

Fri Aug 12 13:21:23 +0000 2011 - tweet id 102006767952736257 - #58
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@TheCoffeeKlatch For Gregory's disease The Blood Journal has been an awesome resource. http://bloodjournal.hematologylibrary.org/ #tck

Fri Aug 12 13:21:16 +0000 2011 - tweet id 102006739725062145 - #59
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@bellarose0608 RT @TheCoffeeKlatch: "docs dont know EVERYTHING there is to know?" >we've seen enough mis-dx to know this can be true at times. #tck

Fri Aug 12 13:21:04 +0000 2011 - tweet id 102006690798505984 - #60
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@trishpip RT @TheCoffeeKlatch: I've also learned to Google better. I seem to get better quality information using proper terminology. #tck

Fri Aug 12 13:20:56 +0000 2011 - tweet id 102006656778514432 - #61
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@dialdoctors While using Dr. Google for medical needs & diagnoses isn't the best route to take, it's great to have a hand from Google for research. #tck

Fri Aug 12 13:20:45 +0000 2011 - tweet id 102006609131216896 - #62
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@TheCoffeeKlatch RT @dialdoctors: Physicians and patients should be aware that the quality of information available online varies greatly. #tck

Fri Aug 12 13:20:12 +0000 2011 - tweet id 102006469809020928 - #63
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@TheCoffeeKlatch @RiversidePD Good morning and welcome! #tck

Fri Aug 12 13:19:54 +0000 2011 - tweet id 102006393602715648 - #64
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@dialdoctors Physicians and patients should be aware that the quality of information available online varies greatly. #tck

Fri Aug 12 13:19:34 +0000 2011 - tweet id 102006311402741760 - #65
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@TheCoffeeKlatch If something I've learned doesn't make sense to me, I ALWAYS ask a professional for clarification. #tck

Fri Aug 12 13:19:19 +0000 2011 - tweet id 102006248286855170 - #66
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@TheCoffeeKlatch My heaviest google usage is simply to understand terminology. Physiology, too. #tck

Fri Aug 12 13:18:15 +0000 2011 - tweet id 102005981684314113 - #67
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@TheCoffeeKlatch I've also learned to Google better. I seem to get better quality information using proper terminology. #tck

Fri Aug 12 13:17:22 +0000 2011 - tweet id 102005758715109376 - #68
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@youarelovedTSS @TheCoffeeKlatch everyone should be focused on continuing to learn and grow - including drs #tck

Fri Aug 12 13:16:44 +0000 2011 - tweet id 102005599721631744 - #69
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@TheCoffeeKlatch Do I dare say that docs don't know EVERYTHING there is to know? I think an educated advocate is a key player. Always questioning. #tck

Fri Aug 12 13:15:36 +0000 2011 - tweet id 102005315163267072 - #70
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@bellarose0608 One symptom found leads to another dx, leads to another, etc-a vicious cycle, and u dx yourself w/a terrible disease-go to the doctor! #tck

Fri Aug 12 13:14:51 +0000 2011 - tweet id 102005122799910912 - #71
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@TheCoffeeKlatch RT @dialdoctors:Today, 37% of American adults occas. use the Internet 2 self-dx illness>how many of those incorrectly dx themselves? #tck

Fri Aug 12 13:14:09 +0000 2011 - tweet id 102004949101191169 - #72
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@TheCoffeeKlatch Yes, I am guilty of 'symptom searching'. Wanting to match symptoms to a cause.... #tck

Fri Aug 12 13:13:10 +0000 2011 - tweet id 102004700479619072 - #73
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@bellarose0608 RT @dialdoctors:Today, 37% of American adults occas. use the Internet 2 self-dx illness>how many of those incorrectly dx themselves? #tck

Fri Aug 12 13:12:14 +0000 2011 - tweet id 102004464977854464 - #74
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@TheCoffeeKlatch RT @youarelovedTSS a friend is fond of saying 87% of all statistics quoted in casual conversation are either misunderstood or made up #tck

Fri Aug 12 13:12:02 +0000 2011 - tweet id 102004413765386240 - #75
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@youarelovedTSS @TheCoffeeKlatch unless you a resource that allows you to access them you are pragmatically "locked out" #tck

Fri Aug 12 13:11:36 +0000 2011 - tweet id 102004308639358976 - #76
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@TheCoffeeKlatch @dialdoctors I like that 'six percent ADMIT'. The real percentage is significantly higher, I assure you! #tck

Fri Aug 12 13:11:17 +0000 2011 - tweet id 102004226548449280 - #77
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@youarelovedTSS @dialdoctors a good friend is fond of saying 87% of all statistics quoted in casual conversation are either misunderstood or made up #tck

Fri Aug 12 13:10:52 +0000 2011 - tweet id 102004122538090496 - #78
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@TheCoffeeKlatch @youarelovedTSS Good morning! I only wish it was easier to access them. #tck

Fri Aug 12 13:10:26 +0000 2011 - tweet id 102004011544219648 - #79
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@dialdoctors Six percent admit they always seek health advice online, where professionals and nonprofessionals dispense advice at will. #tck

Fri Aug 12 13:10:10 +0000 2011 - tweet id 102003944687013888 - #80
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@TheCoffeeKlatch My Mantra: There has never been another Gregory with this exact disease, going through this exact treatment. Stat of ONE. #tck

Fri Aug 12 13:09:50 +0000 2011 - tweet id 102003861539135488 - #81
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@dialdoctors Today, 37 percent of American adults at least occasionally use the Internet to self-diagnose an illness. #tck

Fri Aug 12 13:09:47 +0000 2011 - tweet id 102003849740550144 - #82
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@youarelovedTSS @TheCoffeeKlatch exactly! quality of online information varies widely -- peer reviewed journals are always ideal #tck

Fri Aug 12 13:09:31 +0000 2011 - tweet id 102003780320632832 - #83
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@TheCoffeeKlatch RT @bellarose0608: Stats dont always hold much water, as we find out early when it comes to certain diagnoses #tck

Fri Aug 12 13:08:55 +0000 2011 - tweet id 102003629598314496 - #84
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@TheCoffeeKlatch @inkscrblr Good morning! Thanks for being here. #tck

Fri Aug 12 13:08:21 +0000 2011 - tweet id 102003487633719296 - #85
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@bellarose0608 Stats don't always hold much water, as we find out early when it comes to certain diagnoses #tck

Fri Aug 12 13:08:15 +0000 2011 - tweet id 102003463847804928 - #86
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@TheCoffeeKlatch A personal frustration....medical/journal articles are often available by paid subscription. I understand why, but..... #tck

Fri Aug 12 13:07:42 +0000 2011 - tweet id 102003326253662208 - #87
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@inkscrblr RT @TheCoffeeKlatch: Through times of anxiety and wanting knowledge I seek out Dr Google. #tck

Fri Aug 12 13:07:32 +0000 2011 - tweet id 102003282523865089 - #88
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@TheCoffeeKlatch @dialdoctors Morning! Happy to have you along! #tck

Fri Aug 12 13:06:39 +0000 2011 - tweet id 102003059089080321 - #89
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@TheCoffeeKlatch I am also always on the lookout for families with G's same dx. Wanting to connect and offer support. #tck

Fri Aug 12 13:06:11 +0000 2011 - tweet id 102002945033375744 - #90
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@dialdoctors Good morning Mindi! So glad to be joining on this Friday morning. I definitely Dr Google? More coming up. @TheCoffeeKlatch #tck

Fri Aug 12 13:06:00 +0000 2011 - tweet id 102002897063124993 - #91
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@bellarose0608 RT @TheCoffeeKlatch: @bellarose0608 I google like crazy about Gs health.Take it w/a grain of salt & always clarify w/doctors>DEFINITELY #tck

Fri Aug 12 13:05:31 +0000 2011 - tweet id 102002774836908033 - #92
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@TheCoffeeKlatch My greatest lesson was to surrender to the fact that G is a statistic of ONE. I do not put any weight in stats. #tck

Fri Aug 12 13:04:45 +0000 2011 - tweet id 102002583467597824 - #93
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@TheCoffeeKlatch @bellarose0608 I google like crazy about G's health. Take it with a grain of salt and always clarify with his doctors. #tck

Fri Aug 12 13:03:35 +0000 2011 - tweet id 102002290134753280 - #94
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@bellarose0608 And certain "minor" medical issues #tck

Fri Aug 12 13:03:35 +0000 2011 - tweet id 102002289417519104 - #95
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@bellarose0608 But I do google when I want to know about specific behaviors or issues with my kiddos. #tck

Fri Aug 12 13:03:02 +0000 2011 - tweet id 102002150871277568 - #96
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@bellarose0608 But I do pick & choose when and what I google - I specifically did NOT google when my daughter was diagnosed with Wilms-2 much bad info #tck

Fri Aug 12 13:02:20 +0000 2011 - tweet id 102001975599702018 - #97
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@TheCoffeeKlatch We want information, comfort, support, we want to KNOW the details about our #specialneeds kiddos. #tck

Fri Aug 12 13:02:06 +0000 2011 - tweet id 102001914216062976 - #98
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@TheCoffeeKlatch @bellarose0608 Morning! Thanks for being here! #tck

Fri Aug 12 13:01:05 +0000 2011 - tweet id 102001661920284672 - #99
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@TheCoffeeKlatch Through times of anxiety and wanting knowledge I seek out Dr Google. #tck

Fri Aug 12 13:00:41 +0000 2011 - tweet id 102001559759622144 - #100
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@bellarose0608 Morning Mindi! I Google daily!!! #tck

Fri Aug 12 13:00:29 +0000 2011 - tweet id 102001508526198785 - #101
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@TheCoffeeKlatch Good morning and WELCOME! Mindi, here. Do you Dr Google? I sure do. #tck

Fri Aug 12 13:00:05 +0000 2011 - tweet id 102001407967768577 - #102
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@TheCoffeeKlatch To join our automated chatroom go tohttp://tweetchat.com/room/tck sign in - click authorize app - turn your speed down to 5 seconds #tck

Fri Aug 12 12:54:34 +0000 2011 - tweet id 102000019321798656 - #103
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@LornadEnt Help for Struggling Readers: The Reading Focus Card Receives Prestigious Award http://t.co/KySKFSW #tck #reading #readingproblems #dyslexia

Fri Aug 12 12:45:40 +0000 2011 - tweet id 101997778980454400 - #104
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@TheCoffeeKlatch Grab your coffee! TweetChat in 20 minutes. Do you Dr Google?#Childhoodcaner #specialneeds @thecoffeeklatch #tck http://ow.ly/61zhx #tck

Fri Aug 12 12:40:43 +0000 2011 - tweet id 101996532722712576 - #105
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@magnificentmndi Grab your coffee! TweetChat in 20 minutes. Do you Dr Google?#Childhoodcaner #specialneeds @thecoffeeklatch #tck http://ow.ly/61zhx

Fri Aug 12 12:39:52 +0000 2011 - tweet id 101996319782088707 - #106
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